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Showing posts with the label breast cancer

both sides now

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Photo by George Kedenburg III on Unsplash I am trying to find a new way of being in the world, but I keep worrying about my lymph nodes. For years, the wisest people—Fr. Greg Boyle, my therapists, my Instagram Explore page (okay, it is not the wisest or a person)—have preached Living In The Moment. Or rather, they have talked about it, but they haven't preached, because I don't like preachers.  Fr. Greg said, This—this here is heaven.  I thought, I will try to live in the moment in the future. The Future seemed like a kind of heaven. If I earned it, through good works and the right kind of disordered eating, I could live there unencumbered. The future would hold promises of More Future. But first I needed to be granted a pass, and that pass would look like normal-range lab results all down the page.  Maybe I've told this story before (I worry that retelling stories is a sign of brain metastasis, but it might also be proof that I need to tell myself the same stories over ...

dozens of narrow fault lines

Denise's mother flip-flopped onto campus in a white tennis skirt each afternoon. Smoker's cough, sun-browned legs heels a jigsaw of fissures. Her feet were a wonder to my shade-grown, eight-year-old self. Perhaps Denise's mother made a choice: tennis over moisturizer and a pumice stone. Perhaps in the hours between work and ferrying Denise to gymnastics, she had time for just one luxury. In the months between March and the relentless now, I became reacquainted with my feet. Saw them emerge from boots to meet air and driveway dirt. Was the nail on my second toe always so thick? Dozens of narrow fault lines spread across my soles, and I was helpless to stop them. I always think that knowing should save me. I knew about time and it happened anyway. It was a place where anything was possible I told someone yesterday, through my cotton face mask, referring to my work with former gang members. There was the guy who started a solar panel installation comp...

the toll of chronic uncertainty

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On Friday night, I scrolled through a feed of burning cop cars, protesters in cloth masks, and cops in riot gear. On Sunday morning, I looked at pictures AK texted me from the park: Dash next to a glassy green pond. Trees stooped to touch their branches to the water. I stayed home to catch up on work, which meant writing this blog post about my org's work in the context of police violence. (Official Organizational Statements declaring solidarity with Black people have become a thing in the past few days, which is part of what makes this time--this violence, this uprising--feel like a tipping point, like the moment homophobia finally became an unacceptable default mode. Of course, homophobia has not gone away and even most of my nicest straight friends are casually heterocentric. So tipping points are not victory, but they are  a victory, a big wave in a sea of incremental change.) (Official Organizational Statements also bump up against my dislike of platitudes and virtue signal...

lucky seven and the screaming woman, or: who knows for sure

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This is Venice Boulevard at 8AM on a Friday morning: bright sun, a bite in the air, Alana's Coffee Roasters spilling patrons onto sidewalk picnic tables, tent cities hugging the corners of everything. In front of an event space called (really) Neyborly, a middle-aged white woman wearing suede ankle boots screams. She's yelling at someone not visible to the rest of us. In addition to the distressed yelling, her skin gives her away as a likely resident of one of the tents, though who knows for sure. Her cheeks are that red-brown of too much time outdoors. Neyborly types I've arrived early for a work meeting. I am waiting for lab work to confirm that I still don't have cancer. It's been seven years, but who knows for sure. My physical exam on Thursday went fine. My initial labs, including my liver numbers, were fine. Those are promising data points, but the tumor markers--the ones I'm waiting for--are the biggies. During the wait, I imagine over and over ...

no one is free when others are tethered

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One evening back in the fall, I pushed Dash around Highland Park in his stroller. A carnival had sprung up like a cluster of toadstools in the park next to the library. The lights blurred in the fog and paint peeled from the signs on the rides and exhibitions. It felt like we were in 1992, or 1955, or 1890. The carnival was crowded with families and packs of teenagers and couples with their hands in each other’s back pockets, but I was the only white person I saw the whole time. The sense of witnessing a ghost Highland Park, a fading twin of the mixed, gentrifying neighborhood it is in daylight, was palpable and eerie. Us opens on the Santa Cruz boardwalk in 1986, when a little Black girl named Adelaide wanders into a funhouse called Shaman’s Vision and returns shell-shocked and changed forever. In the present day of the film, it has been renamed Merlin’s Forest, presumably because we don’t appropriate Native American culture anymore. That’s all in the past, right?   ...

we are the coolest

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The first time I met Molly in person, I was coming off a morning spent roaming the aisles at Target, contemplating the fact that, depending how you sliced the statistics, there was a ten percent chance I would be dead in five years. It was 2013. Then I remembered that coffee existed, and I got some and dried my eyes. I sat down at Swork and waited for Molly to find me, which wasn't hard to do because I was the only bald woman in the place. She told me her story, which is to say her cancer story, which was of course only a piece of her story. She'd reached out to me at Poets & Writers about a Poets & Writers thing, but in the process she'd come across my blog, so she added a P.S. to her email: "If you ever want to talk to someone who went through the same thing at a similar age...." And here we were, talking. About fake boobs and prognoses and the super annoying social worker who'd crossed both our paths. I admitted: "I just feel so old and c...

death of the author

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1. PGSD I spent the last couple of weeks preparing for 826LA’s big gala. My coworker Shawn—a woman whose superpower is asking people to do hard things in the most graceful, inspiring way, a skill I wish more powerful men would watch and learn—led the charge, but I was second in command. It was all sales and numbers and making multiple donor management databases talk to each other, none of which is my jam. Toward the end, I was working 12-hour days. Also not my jam. My eating habits tanked. My parenting was meh. I relied on AK for a lot and didn’t give much in return. The night of the event, I worked registration in the role of “trouble shooter.” At Homeboy’s gala, if a name wasn’t on the list, I just sent that person down the line to the Lady With The Laptop. Now I was the Lady With The Laptop, which was mildly terrifying. I went in feeling rather proud of my meticulously devised and revised seating chart, and I finished in tears. Being the Lady With The Laptop at a gala e...

pms of the soul

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Back in the day, whenever a woman ran for office, some dude would fret about what would happen when she got her period (now we’ve found both more nuanced and more blatantly hateful ways to take swings at women running for office). The idea being that there were only two ways of being in this world: cerebral, level-headed Enlightenment machine or crazy, Medusa-haired PMS monster. Me on Thursday. I haven’t gotten my period in almost five years*, but if this week was any indication, my moods are still going strong. I will never be a level-headed Enlightenment machine—as mythical a creature as Medusa anyway—and, because of the way I was raised, I’ll probably never see that as completely fine. Even though it is. I am thinking of the time I told our couples therapist I was hesitant to take anti-depressants because I didn’t want to put chemicals in my body. She said, “There are already chemicals in your body. You get to choose whether you want to flood your body with cortisol or Z...

to memoir or not to memoir

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Here’s a problem that, like much of what I write about on this blog, exists mostly in my head. But that’s why I have a blog, so here goes: What if I should not be writing a memoir? Flashback to November 2012. Coming off the Great Mind-Destroying Miscarriage of 2011, I was diagnosed with cancer, and my third thought (after Am I going to die? and Will I die before I get to be a mom? ) was: Fuck it, I’m writing a memoir. I know that a memoir needs to be more than just the story of several shitty things happening in a row, and soon enough, I found a theme for my series of unfortunate events. My memoir, in its current half-draft form, is about how my mom’s death led me to worry I didn’t deserve parent-child love, and how I eventually convinced myself otherwise. It’s also about what a bitch imagination is—how storytelling can be the hypochondria that nearly kills you, or the hopeful meta-memoir that saves you. How’s that for an elevator pitch? When I write it out like that, I...

seasons of love

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Everything Cheryl does, she’s totally joking and completely serious.             --AK 2,628,000 minutes 2.6 million moments so dear 2,628,000 minutes How do you measure, measure five years? In new jobs , in boob jobs , in blog posts, in cups of coffee In coffee, more coffee, in coffee, and tea In 2,628,000 minutes How do you measure five extra years? How about love? How about love? How about love? Measure in love Seasons of love 2,628,000 minutes 2.6 million plans gone awry 2,628,000 minutes How do you measure public places I’ve cried ? In grants that I wrote, and novels on the side   Facebook rabbit holes are no source of pride It’s time to kiss Dashaboo Though he’s sticky with jam Let’s celebrate, remember five years Of making people deal with who I am Remember the love Remember the love Remember the love Measure in love Rent rent rent rent reeeee...

bring them along

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1. the tired ones I was on my way to the ATM when I saw Tara.* She was camped out on the sidewalk next to the bus lot, and if I didn’t know her, I would have walked right by her, the way I do most of Chinatown’s street-corner characters. Someone had brought her a cup of water and a takeout box of food from the café, and someone had given her a black and white umbrella, which she shifted from side to side as she talked. It shielded about half her body from the sun. She talked rapidly but lucidly. She seemed annoyed at having to reside in her body. She was dressed as she always was, in black track shorts and a black tank top that showed the marks on her skin. From what? I’m not sure. From a hard life, I guess. Her hair was short and neat, graying at the temples. Skin shiny in the sun. “I’ve tried to die so many times,” she said. “Why won’t God just let me go? I’m so tired. I was supposed to die three times.” A few weeks ago, she’d been doing okay, coming to Homeboy’s ...